Wednesday, May 28, 2008

SUPERBUG???? WHY????

As most of my friends know I have been battling an ongoing a MRSA Methicillin-Resistant Staphylococcus Aureus infection for a very long time. Four years ago I had sinus surgery and this staph infection made a new home in my left sinus cavity passage.


I waited for another four long miserable years and in the meantime researched out all the top specialists in the United States. This included New York, Chicago and Houston. I confidently settled on an excellent Doctor in Newport Beach, CA. Dr. Daniel did an extensive surgery and harvested my own rib, an ear and a section of scalp fascia to regenerate what the staph had destroyed before in my face. I waited patiently ten days and thought I was in the clear and headed back to Texas. I woke up this past Monday morning (Memorial Day) and my abscess was back in full force. I was truly heartbroken, almost to hysteria. My wonderful husband, John and I spent the day in the Emergency room. I was given I.M. antibiotics and some in pill form.

Obviously not able to fly back to California I could not consult with my physician. Yesterday, Dr. Daniel sent me to a colleague of his at the globally recognized Texas Children's Hospital. This facility is the most incredible in the world. This was my first introduction to the brilliant Dr. Sam Stal, who is chief of surgery at TCH. He cultured my nose and brought in his associate, Dr Sheldon Kaplan who is Chief of Infectious Diseases. I knew in my heart I had the A-TEAM! I went from borderline hysteria to these men putting me at ease. They both agreed the staph strain had been out of control in Texas and they felt like this was no easy journey I was about to endure. Once they survey the culture for various strains they will decide by later today or tomorrow if my antibiotics are having any effect. I guess I will know in the next few hours if I have to be admitted back into the hospital.


You can only imagine how I felt when I left the hospital yesterday and most of today. To say I felt defeated and crushed is an understatement. I have been home studying all I can on the MRSA virus and how you can protect yourself. Please take notice and take these precautions to protect yourself and your loved one from this virus that lays dormant in all of us but killed 19,000 last year.









I feel a bit like Chicken Little-Revere, shouting "the Staph/MRSA is coming!" But I really don't think that enough about this is being told. Do you even know what I'm talking about when I say Staph and MRSA?Why is that? Mainstream media doesn't talk about it much because it isn't "fun" news - (but they would talk about it a lot if alcohol based hand gel was an expensive product advertised on their channel!) No, a bacterial infection that is resistant to almost all our present-day antibiotics is scary. We don't really want to hear about it, do we? It used to be that this was mainly a problem for older people, sick people, or anyone with a weak immune system. I personally have had Meningitis four times, so my own immune system is much weaker than most. Alas, there have been cases of perfectly healthy middle school aged children who are fine one day and the next day they're on life support.



A new study found that invasive MRSA infections, the kind that attack the blood or bones, occur more than 94,000 times a year in the United States. In 2007 studies show more people died from the MRSA staph than Auto Immune Deficiency Syndrome related cases. While most of those infections occur in hospitals, others are picked up in the outside world. Here, expert tips on how to protect yourself.

1. Wash your hands—a lot.MRSA passes by touch. Use soap and hot water. And carry a hand sanitizer when you don’t have access to a sink. Use bleach wipes to clean your keyboard and all phone sets. Wipe your cell phone down often.

2. Be on guard at the gym.Bring your own yoga mat, and wear workout gear that covers your skin.

3. Check it out.Pay attention to pimples or spots that look like spider bites. If they become painful or red, see a your doc—or visit a drop-in clinic or an ER. And don’t be shy about asking about MRSA.



When I first contacted this in 1995, I assumed (like many) I had been bitten on my upper leg by a spider. I went to the Doctor when this hard, hot boil started to form. The Doctor did not treat me for staph since it was not rampant and virtually unrecognized then. I had been in Coronary Intensive Care Unit for six days before I woke up from a coma. My leg was saved but I nearly lost it in this process. This happened so fast -- in almost 72 hours.

Keep in mind you MUST regularly clean your bathroom, kitchen, and all other rooms, as well as your personal items. Wash clothes and other items that are contaminated with hot water or bleach, when possible. Drying clothes in a hot dryer, rather than air-drying, also helps kill bacteria in clothes.It also helps to carry sanitizing wipes for public bathrooms, phones, shopping carts, and door handles. It also helps to carry a small bottle of alcohol-based hand sanitizer.

Please, please take the precautions necessary!!

21 comments:

Anonymous said...

Hi Kristi! I’ve been catching up on your blog and wanted to let you know you are in my prayers for a speedy recovery! 
MRSA is such a nasty thing and I admire you for getting the word out there about it!
I am constantly making our boys wash their hands, and let me tell you it works, because now (as teenagers) the first thing they do whenever they walk in the house is wash! I always chuckle to myself, thinking I have made them OCD about handwashing, but it is SO important!

Sinclair is so adorable and I have enjoyed keeping up with her pictures on the blog! She is one lucky little girl!
All our best to you and John from me and Mario……………… and hope your staph infection clears up FAST!


Sarah C

Anonymous said...

Hi Kristi! I’ve been catching up on your blog and wanted to let you know you are in my prayers for a speedy recovery! 
MRSA is such a nasty thing and I admire you for getting the word out there about it!
I am constantly making our boys wash their hands, and let me tell you it works, because now (as teenagers) the first thing they do whenever they walk in the house is wash! I always chuckle to myself, thinking I have made them OCD about handwashing, but it is SO important!

Sinclair is so adorable and I have enjoyed keeping up with her pictures on the blog! She is one lucky little girl!
All our best to you and John from me and Mario……………… and hope your staph infection clears up FAST!


Sarah C

Anonymous said...

Mine was strep, but same damn thing

Let me know how you are doing



BB

Lorrie Veasey said...

Hi- I hope you kick this staph infection's ass and are well soon. My Mother In Law fought the same bug--she had an experimental treatment at UPenn and is doing great now. I will keep good thoughts for you and yours.

Lorrie
www.ournameisblog.blogspot.com

Anonymous said...

WOW I am so sorry to read this. I must be honest and tell you when I read your blog I was so envious of your life -- gorgeous daughter and a husband you obviously adore. You seem to have it all.

Just goes to show you that no one's life is truly ever as "rosie" as it seems.

You fight the battle. You and your family are in our prayers


Godspeed

Anonymous said...

Kristi, you don't know me either but read your blog faithfully.

Just wanted to let you know you are in my thoughts and prayers.

God bless.

Carla said...

Kristi -
I know how the MRSA thing goes. I have it in my lungs, because of my CF and all the time I spend in the hospital. I know it's in my sinuses too, but I've been lucky enough to not have it spread anywhere else yet.

If you want someone to talk to about antibiotics and things like that, I've been on most of them before.

I hope you are able to get rid of it soon!!!

~Carla

Anonymous said...

You are such a beautiful person with a gorgeous family - that all your readers can tell is the light of your life

you are in our hearts and in our prayers

you will overcome this


Bess

Anonymous said...

I am totally addicted to your blog. I logged on today and I was having a somewhat hectic day and really looked forward to seeing the world through your eyes.

After reading your struggles it made my day much more appreciated

It broke my heart to hear the struggles you have had to endure since 1995!!!! The staph virus is deadly and very scary

Please know that you have a lot of your readers praying for you


Katherine Wells
San Fran, CA

lisa said...

Thanks for the heads up about MRSA.
Hope this finally gets resolved for you.

Laura said...

Hi Kristi!
I recently discovered your blog and I love it and your gorgeous family! I am so glad you are writing about MRSA, it is truly an epidemic. I just finished my freshman year at college and I lived in the dorms. There were THREE cases of MRSA last year. My mom ended up writing the president of my school, because the head of housing told her they were not doing anything extra to protect other students from infection. I think that people hear about staph infections all the time, but don't really think much about it. I am sending good thoughts your way, I hope you have a speedy recovery!
Laura

Emily said...

I am so sorry that you are not well, that is terrible. I will say a prayer for you today.

Anonymous said...

Time to rent the house in south of france for 6 months and put you on a sabattical until



RF

Anonymous said...

Kristi!!!
OMFG - I just read your blog - HOW ARE YOU?? I can not imagine how devastated you are over this - I am so sorry!!

What can I do to help you?? Can I bring lunch over and sit and visit next week??

Theresa

Anonymous said...

Just read your blog and got your e-mail. OH MY GOD!

Ironically, I had a staph infection resulting from sinus surgury! It took a couple of years to get rid of it, constantly on antibiotics and feeling lousy most of the time. It was an up and down thing with me. Your case is obviously much more severe than I could ever imagine. Please let me know if there is anything I can do.

I have a bottle of Xanax I will be happy to share, and if not for Prozac, hysteria would have set in a long time ago, I highly recommend both to calm the anxiety and depression. No one who really cares about you will worry about what you look like, but lets pray that it won't come to that.

I will be thinking of you and keeping you in my prayers. Call if you need anything.

Candace

Anonymous said...

Just goes to show you Barbie doesnt have it all......

Anonymous said...

MRSA is awful. Last year my husband had to have surgery after getting MRSA, a month later my twin daughters (18 mo. at the time) had MRSA and I have had several MRSA problems. In fact right now I have a "boil" on the back of my leg that is MRSA and the Dr. is wondering if I need surgery. I am on HIGH dose of antibiotic, washing the spot with special wash, taking clorox baths...oh it's bad. Good luck to ya and hope it all goes well for you!

Jenn
johnandjennb(AT)bellsouth(DOT)net

Anonymous said...

Im really sorry your going through this. I have a new baby and am terrified of MRSA. The doc thought I had it but it was just an infected finger...phew. Love your blog, my dad lives in Pilot Point Tx, so its fun to read about people who are very similar to him and his wife and new son. I will be sending healing thoughts your way. You take care now and keep us posted

Jessica K
Orcas Island, Wa

Anonymous said...

Hi Kristi,

That sounds like an unbelievable ordeal. I have to admit that I was feeling a little disappointed in our performance at the NCAA Championships and then I read your email and was suddenly struck with a giant case of perspective. You are in our thoughts and prayers and I hope you know that if there is anything Julie or I can ever do for you, we are only a phone call away. Keep your head up and stay positive and know that your family and friends love you and want to see you back in action ASAP!

Two things I have to say. First, (and I know this is an oxymoron) you are the smartest blond I know, so take care of your brain. And second, your biggest problem is that you are the hostest with the mostest so be as rude as possible to this infection and get it the hell out of your body. Sorry for the corny humor but I hope it brings a small smile to your face. We love you and hope to see you soon.

Get Better Quick,

J.T.

Anonymous said...

KK,

This weekend, Jenna filled me in...your are in my prayers..I know we don't know each other very well....if you need anything at all...let me know...I am officially out of school for the summer and have all the time in the world...especially for wine...xxxoo

Jess
Sent via BlackBerry by AT&T

Anonymous said...

Hi Kristi, I am a Texas transplant from Southern California, lived in the Galleria area for 4 months last year till I had my third baby and then we moved to our new home in The Woodlands. I enjoy reading your blog and seeing your picture in the gala reports in the newspaper...it makes me feel a little bit more connected here since I don't get out much with the three kids-- all our family and friends are back in So Cal. Anyway, I am so sorry about your MRSA, I hope it clears soon. You have such a lovely presence--Houston would be deprived if this slows you down! Just wanted to add my two cents about the cleaning tips to prevent the spread -- and also thinking about germ concerns for your PICC-- get a steam cleaner machine (like the shark or costco has a more robust one) and use it often. It steams away bacteria and kills lots of nasty stuff without the use of chemicals. Shark also has a steam mop that it very easy and quick to use. You can really smell the clean after using it! I am not affiliated with any of the products, but they are used in my home with outstanding results. I want you to get better soon and this is the only thing I could think of to share with you besides happy thoughts and special blessings since I don't know you personally and probably never will.

Take care!